“Raise awareness in the area of Neutropenia and Funds to put towards research for neutropenia and childhood bone marrow failure disorders; to one day find a cure and make a difference.”
The Ella Jewell Foundation (EJF) was established in honor of Ella Jewell who was born on September 2, 2009 and shortly after diagnosed with Severe Congenital Neutropenia. Ella’s family is determined to raise awareness in the area of Neutropenia and funds for research. We want families to have the proper resources and options for treatment. Our mission is to make a difference and help fund this much needed research.
The Ella Jewell Foundation was formed in 2010 and as of December 2016, over $300K dollars has been raised and donated to the Severe Chronic Neutropenia International Registry. Moving towards a cure and making a difference!!!
In addition the EJF has also donated to the National Neutropenia Network (NNN) for patient support programs. And, has contributed to funding for the annual Kids Camp at the NNN conferencece.