Ella Jewell

Foundation

 

Our Mission 

“Raise awareness in the area of Neutropenia and Funds to put towards research for neutropenia and childhood bone marrow failure disorders; to one day find a cure and make a difference.” 

The Ella Jewell Foundation (EJF) was established in honor of Ella Jewell who was born on September 2, 2009 and shortly after diagnosed with Severe Congenital Neutropenia. Ella’s family is determined to raise awareness in the area of Neutropenia and funds for research. We want families to have the proper resources and options for treatment. Our mission is to make a difference and help fund this much needed research.

The Ella Jewell Foundation was formed in 2010 and as of December 2016, over $300K dollars has been raised and donated to the Severe Chronic Neutropenia International Registry. Moving towards a cure and making a difference!!!

In addition the EJF has also donated to the National Neutropenia Network (NNN) for patient support programs. And, has contributed to funding for the annual Kids Camp at the NNN conferencece. 

Foundation

Leadership

Committee

Members

Kristin McGuinness

Robert McGuinness

PRESIDENT

VICE PRESIDENT

Andrea

Boyle

SECRETARY

Alyssa

Genovese

SECRETARY

Cheryl

Genovese

TREASURER

Alyssa

Genovese

Anothny

Genovese

Bridget

Genovese

John

Lambrosa

Susan

Lambrosa

Gretchen

Long

Bob

McGuinness

Debbie

McGuinness

John

McGuinness

Megan

Reilly

© 2017 The Ella Jewell Foundation | Pixels&Co

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